Kwimpelaveki endaphumelela ngayo kwisikolo somthetho, umama wandixelela ukuba ndine-ALS, isifo semithambo-luvo esinganyangekiyo. Ngaphambi kwelo xesha, ndandiphila ubomi obulula. Eyona ntlungu inkulu endayifumanayo kukwahlukana kakubi, yaye ubukhulu becala ndonwabile. Kunyaka olandelayo, ndaya kuhlala notata ukuze ndincedise ekunyamekeleni umama. Ekubeni kwakungekho nto ingako esasinokuyenza, ubukhulu becala sasizama ukubonisa inkxaso yakhe njengoko sasiphulukana naye ngokuthe ngcembe.
Kungaphelanga neminyaka emibini umama eswelekile, kwafunyaniswa ukuba utata une-non-Hodgkin lymphoma. Wayigqiba ngempumelelo ichemotherapy, kodwa umhlaza wabuya kwisithuba esingaphantsi kweminyaka emibini. Ndihlale iiveki eICU ecaleni kwakhe ngaphambi kokuba ndiphulukane naye. . . Usuku lokuzalwa lukamama.
Ngaphantsi kweminyaka emithathu emva kokufa kukatata, kwazalwa intombi yam uFianna. Zininzi izinto ezindoyikisayo ngokukhulelwa, kodwa eyona nto yayindoyikisa kukuba ndibe ngutata ngaphandle kwabazali bam. Ndiphuphe abazali bam beza kudibana naye esibhedlele okanye bandothule emva kokungalali ebusuku.
Kodwa ngaphezu kwako konke, ndandisoyikela ukuba intlungu yam yayiza kundithintela ekunandipheni ulonwabo lokuba ngumzali. Ukuba nentombi ngaphandle kwabazali bam yayisisikhumbuzo esicacileyo sokungabikho kwabo ebomini bam. Andizange ndikwazi ukuyibamba intlungu eyayibangelwa kukwazi ukuba uFianna soze adibane noninakhulu noninakhulu kwaye soze bamazi.
Alithandabuzeki elokuba ukungabikho kwabazali bam ebomini bam nobentombi yam kuyawafihla amava am okuba ngumzali. Akho nemini egqithayo ndingafuni badibane nomntwana wabantu omhle endibiza intombi yam.
Kodwa into ebendingayilindelanga kukuba iminyaka yentlungu nentlungu indilungiselele ngokwasemzimbeni nangokweemvakalelo ukuba ndibe ngutata. Kwiminyaka esibhozo ukususela oko abazali bam bagula baza basweleka, ubomi bam buye baxatyiswa kukubona ugqirha, ukuya esibhedlele, ukudandatheka nokuphelelwa lithemba. Ndandidinwe emzimbeni nasemphefumlweni ngenxa yeeyure endandizichitha ndibabukele besifa yaye ndivakalelwa kukuba akukho nto ndinokuyenza ukuze ndibancede.
Iintsuku zokuqala zomama akulula: ukuncelisa, ukulala okuncinci, ukuhlwa ebusuku, ukungabikho kwexesha lokuhlamba. Kodwa iminyaka emininzi yosizi endiye ndaba nayo nabazali bam yandivumela ukuba ndilixabise ithuba lokubukela usana lukhula. Emva kokungalali ebusuku ezibhedlele, ndaziva ndikulungele ngakumbi ngokweemvakalelo nangokwasemzimbeni ukuba ngumama, yaye ndayiqonda indlela endandinethamsanqa ngayo ukubona usana lwam lukhula emva kweminyaka lufile. zintanda zam
Ukuba ngumzali kunzima, kwaye ngokuqinisekileyo ndinamaxesha amaninzi okudinwa kunye nokudandatheka. Kodwa ukuswelekelwa ngabazali kwam kwandinika umbono wendlela ilahleko eqhelekileyo ngayo nendlela esimele siphile ngayo kuwo onke amaxesha amnandi esinawo.
Ndingenza nantoni na ukutshintsha indlela yembali ngenye indlela kwaye ndibe nabazali bam apha nam, kodwa endaweni yoko ndithatha yonke into ndiyamthanda uFianna kuba ndiyazi ukuba abazali bam abakwazi.
Umthombo womfanekiso: Katie C. Reilly
